From the Institute for Family-Centered Care Conference
Hi there-In August, Sorrel had the opportunity to attend the Institute for Family-Centered Care's 4th International Conference in Philadelphia. The Institute for Family-Centered Care (IFCC) is a non-profit working with patient advocates and health care providers to improve care delivery. Sorrel was honored to deliver the closing plenary address. IFCC hosted two book signings in support of Josie's Story. Sorrel loved meeting with the dedicated conference attendees, who are going back to hospitals all around the country and work to strengthen productive partnerships between families and health care providers. Thank you to everybody who stopped by the book table.
Here are two pictures from Philly:
Photo Credit: Institute for Family Centered Care
Photo Credit: Institute for Family Centered Care
Thanks to the entire IFCC's team- with a special nod to Bev Johnson and Julie Ginn Moretz- for their hard work in creating a meaningful, successful conference!
-Andrea
P.S.- Come back next week for a special note from Sorrel.
Labels: Book, by Andrea, Speaking
posted by JosieKingFoundation @ 4:51 AM
1 Comments:
At September 17, 2009 at 3:29 PM ,
Anonymous said...
Dear Sorrel King,
I just read your article featured in this month's Good Housekeeping. I just felt compelled to tell you thank you for sharing your story. I imagine opening up all those wounds were hard to do. You are a brave, and inspiring woman.
Our family recently went through traumatic medical discoveries last October, when my seemingly healthy nine-year old daughter, Natalie developed a rash, and fever. We just figured it was due to the antibiotics she was taking, but after further probing doctors at Children's hospital in Milwaukee found she actually had a heart defect....and couldn't explain to us..why it was 1.)never discovered, and 2.) why she was still alive? She was diagnosed with Kawasaki disease first, and then they stumbled upon her heart defect.
Though my story is much different, and my daughter is doing much better. She underwent open-heart surgery last December. Your story resonated with me...especially when you discussed never leaving your daughter's side, and documenting everything the doctor's and nurses's did. I did the same. There were times I was frustrated because noone would listen to me. Josie's Foundation will help shed some light on the need to listen to the parent's more. Who better to know their child?
In closing, I just wanted to thank you for sharing your story. I had a few moments before my children return home from school, and I'm so glad I took the time to read your story. For the first time since last year when my daughter became ill did I just cry. I felt good to sit here, and just let it out. I feel sadness for you, your family, and any parent who knows how it feels to be at the bed side of a sick child, or a grave.
I will share Josie's story with my family tonight, and count each blessing too. I can feel that your daughter is not gone away, but she is flying with the angels. I just can feel it.
Take care, and god bless,
Donna Meiselwitz
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